FOR HEART WARRIOR BABIES

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As another way to honor and remember sweet Hayden, we have compiled five of Hayden's favorite things into care packages to be distributed every year on his birthday, March 12th, to the infants inpatient in the CICU (Cardiac Intensive Care Unit) at CHOP (Children's Hospital of Philadelphia), CHONY (Childrens Hospital of New York), CHP (Childrens Hospital of Pittsburgh) Boston Children’s, Mount Sinai in New York City, and Geisinger Medical Center in PA. We hope these items are as useful to these heart families as they were to us during our precious time with Hayden.


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SMILE SACS & HOLIDAY CHEER

These care packages are carefully compiled for babies and children on pediatric cardiac floors in five East Coast hospitals. Many of the items for these packages are donated by our supporters. Several people contact us each year asking how they can help honor Hayden's Heart for their child's birthday, school fundraiser, girl scout troop, and more. We usually refer them to our care packages since these are often fun items for people to buy - and knowing that their donation is making a young cardiac patient in the hospital smile makes them feel good about what they are doing to give back.

If you are interested in donating to these items or would like to explore the option to have your local pediatric cardiac floor receive these packages, please contact Ady.

Smile Sacs

These packages include gifts geared towards toddlers or young children - arts and crafts, cards or other games, and small toys. We send these care packages to the pediatric cardiac floors in the middle of August in honor of Hayden's angelversary in hopes to send some smiles to the kids spending time inside during days they'd much rather be enjoying the beautiful weather outdoors.

Holiday Cheer Care Package

These packages include gifts for the whole family. Games and activities for toddlers and youth, baby essentials, and helpful items for parents staying in the hospital with their child. We send these packages to the cardiac floors during the holiday season in hopes to spread some holiday cheer to patients and families spending this joyous time in a hospital.


RESOURCES FOR WARRIOR FAMILIES


GRANT APPLICATION

Each year, we host five fundraisers. For each event, a heart warrior family is honored and a portion of the proceeds from that specific event is granted to the chosen family. Heart warriors are selected at our annual board meeting each fall for the upcoming years’ events.

If you would like to nominate yourself or a fellow heart family, please visit the online application link. Deadline to submit for consideration for a 2020 event is September 1, 2019.

ONLINE GRANT APPLICATION


Social Security disability help for families with a child with a CHD

Sisters By Heart

A volunteer organization that strives to help moms with newly-diagnosed babies.

Sam Vlasics Foundation

The mission of the Sam Vlasics Foundation is to help children with congenital heart defects and their families.

Beats for Bella

Creating awareness for Congenital Heart Defects and contributing to funding life-saving research.

Mended Little Hearts Philadelphia Region -

Works nationally and in communities to provide hope and support to children, families and caregivers impacted by congenital heart defects in order to extend and improve quality of life.

CHD Babies

CHD Babies was created for new and veteran heart families to find a variety of information about CHD all in one place.

Jameson’s Army

Raising awareness and funding for children and families affected by congenital heart defects in the Pittsburgh, PA and South Western PA.

SADS

To save the lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities.

Whole Hearts Foundation Providing education, support, connections, and innovation for the families of a child living with pediatric congenital heart disease—without boundaries of faith, culture, or economic standing.